How we verify
WhatIsLCA is built for LCA patients and families. Here is exactly how we keep it accurate — what we cite, who reviews it, and how you can flag an error.
Every claim is sourced
Each medical statement — a gene, a date, a trial ID, a result — is backed by a citation to a reliable primary source: peer-reviewed journals (NEJM, The Lancet, Nature Medicine), PubMed, OMIM, the FDA, and ClinicalTrials.gov. We cite the original source, never another encyclopedia or news article that may have copied it, so a false claim can't quietly become 'fact'.
What the review badge means
Every page carries a status so you always know how thoroughly it has been checked.
A named clinician or researcher has validated the page in their area of expertise, with their name and the review date shown.
The content is fully cited but has not yet been formally reviewed by a specialist. We show this honestly rather than implying a review that hasn't happened.
Keeping content current
Medicine moves fast. Reviewed pages show a 'last reviewed' and 'next review due' date (typically a two-year cycle). Fast-changing facts such as clinical-trial status are re-checked against ClinicalTrials.gov on a much shorter cycle, and our open repository records exactly when each change was made.
Spotted an error? Tell us
You don't need to be a doctor — patients and families often catch the things that matter most. Reporting takes seconds, and every report is reviewed.
For clinicians & researchers
If you work in inherited retinal disease, we'd be grateful for 30 minutes of your time to validate the page in your area. In return you get a public 'Medically reviewed by' byline with a link to your profile or lab — a fast, citable way to help the LCA community.
Offer to review a pageAI assistance & transparency
Content is drafted with AI assistance and then verified against primary sources by a human before publishing. Every statement carries a citation you can follow to the original source — and if anything still looks wrong, the report button above lets you flag it in seconds.
Browse or report issues in our public community repositoryMedical disclaimer
This site is for education and information only and is not medical advice, diagnosis, or treatment. Always consult a qualified healthcare professional about your situation.
Read the full disclaimer